Samuel Habib’s goals are pretty typical for a 21-year-old. Moving out of his family’s New Hampshire home. College. Establishing his career. Dating. Sex. Yet every rite of passage is fraught with challenges. Unexpected seizures and uncontrollable movements caused by his rare genetic disorder. Friends’ homes that are inaccessible to his wheelchair. His labored speech and use of a communication device are barriers to a social life. He craves more independence and a family of his own one day. “But no one tells you how to be an adult,” he says, “let alone an adult with a disability.”
Samuel is determined to avoid the statistical realities: unemployment, isolation, institutionalization. A turning point comes when he starts talking to disabled adults, who have been through all he is going through now. And when he begins to channel their insights, a roadmap for himself, and for other young adults like him, begins to take shape.
